Heather

I wanted to throw out a thread about children with physical 'disabilities'. Usually I'm not one for PC-speak, except that my child is differently abled, as I am. 'Disability' is not the right word for how we live. My almost ten-year-old son is a real trooper. I am the luckiest mom in the world.

We have a hereditary skin condition called Epidermolysis Bullosa Simplex. My father passed it on to me, and I passed it on to my son. The subtype we have is a dominant trait; so any of our children have a 50/50 chance of inheriting the genetic predisposition for EBS. It's a blistering skin condition that makes our skin fragile - especially on the hands and feet; and repetitive activity tears us up pretty well. That's the short story. For more information on EB and its various subtypes, you can visit the U.S. research association dedicated to the condition at http://www.debra.org.

When you read about the more severe subtypes - there's another reason I consider us all very lucky!

My young'un is also severely farsighted and has terrible allergies and asthma - all of which are under control with the help of our wonderful medicos.

Does anyone else have a child who's physically differently-abled?

TracyW

Hi Heather ~ no, I can't relate to these conditions but I just wanted to give you a (((hug))). Best of luck with all of the treatments and hope they find a cure for this soon!

Kaytee

I am so sorry your son has this, it sounds kind of scary but livable. Especially with a mom that cares so much and seems very knowledgable.

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