Gluten Allergy. (Not Celiac)...

[he.loves.her]

Lyric is (as some of you know) allergic to Gluten. Her allergy to gluten is like an allergy to peanuts. Not an actualy disease like Celiac. With Celiac you have to cut <I>all</I> gluten from the diet or you'll probably face near-fatal concequences. Lyr is just allergic. But her allergy is pretty strong. With some allergies to gluten you can continue eating it and you'll experience little to no discomfort. With Lyr, even a little bit of gluten causes severe discomfort, diarhea, sometimes a rash. She has trouble sleeping. These things go hand in hand with a gluten allergy. I'm just not sure how to keep her safe from it. And healthy. I have a link to a site for gluten free recipes (which I got from somebody here), But I'm think along the lines of long-term. Gluten allergies often go along with constant fatigue, behavioral problems, weight loss... Those are all long term issues.
Anyway. I just basically wanted to rant my fears breifly. I feel a lot better after I worry and fret for a while.

 

[Music-dad]

I think you are doing the best thing you can right now.

Educating yourself...good for you bud.

 

[Kaytee]

my friends dd is allergic to gluten as well. NOt celieac (they have tested her twice through GI surgeries and its negative) She can't have wheat, oat, barley, or any of that like a a celiac diet. SHe is also allergic to soy, and dairy. SO her meals are meat and potatoes mainly.

I would think to just keep lyric on a celiac diet (even if she is not really ciliac)
Make sure you watch for hidden ingrediants that they hide gluten in though. I don't know them off hand, but can get the list if you need it

 

[Trina]

The symptoms your DD experiences sound like anaphylaxis. A food allergy can be life threatening. A food intolerance just creates discomfort. I would avoid ALL gluten for your DD. Both my kids are severely allergic to peanuts and tree nuts, so this topic isn't new to me. Are you seeing an Allergy/Asthma specialist? If not, I highly recommend it. More info at The Food Allergy &amp; Anaphylaxis Network

 

[he.loves.her]

&lt;r&gt;&lt;FONT font="Calibri"&gt;&lt;s&gt;&lt;/s&gt;I’ve just been keeping her on a Celiac diet. She breaks out in a rash or has sever discomfort if she consumes any Gluten. But Lyr’s been testing several times for Celiac. So I’m pretty certain we’ve just got the allergy to deal with. We had a bit of an episode with the Gluten a while back. She was inpatient for three days!! Yeah, it definitely scared the shit out of me!&lt;e&gt;</SIZE>&lt;/e&gt;&lt;/SIZE&gt;&lt;e&gt;[/FONT]&lt;/e&gt;&lt;/FONT&gt;&lt;br/&gt;
&lt;FONT font="Calibri"&gt;&lt;s&gt;&lt;/s&gt;The thing is, some days are better than others. And today is NOT a good one. I have a hard time coping with Rika's death... And usually I can put on a happy face for Lyr and make believe that everything will be okay, but other days I can't. I'm in major financial stress, I start uni in September. I'm a single father with a 20 month old daughter, and I have so many problems of my own that's it's very, very hard to address both of ours. I'm just in a lot of stress... and I'm unsure of what to do.&lt;e&gt;</SIZE>&lt;/e&gt;&lt;/SIZE&gt;&lt;e&gt;[/FONT]&lt;/e&gt;&lt;/FONT&gt;&lt;br/&gt;
&lt;FONT font="Calibri"&gt;&lt;s&gt;&lt;/s&gt;So there's my rant.&lt;e&gt;</SIZE>&lt;/e&gt;&lt;/SIZE&gt;&lt;e&gt;[/FONT]&lt;/e&gt;&lt;/FONT&gt;&lt;br/&gt;
&lt;FONT font="Calibri"&gt;&lt;s&gt;&lt;/s&gt;Thanks to those who listened to it.&lt;e&gt;</SIZE>&lt;/e&gt;&lt;/SIZE&gt;&lt;e&gt;[/FONT]&lt;/e&gt;&lt;/FONT&gt;&lt;/r&gt;

 

[fallon]

I'm glad to hear you are getting some answers about what's going on with your little girl. Feel free to vent to us anytime

 

[Music-dad]

I still think "Lyric" is one of the greatest names I have ever heard!

KUDOS

 

[he.loves.her]

Why thank you. We tried to give her a name she could feel comfortable in. She's like the lyrics to my song... It wouldn't be right without her.

 

[Music-dad]

Why thank you. We tried to give her a name she could feel comfortable in. She's like the lyrics to my song... It wouldn't be right without her.

I totally understand!

Kayleigh is named after a Marillion song that I love so very dear.

<YOUTUBE id="cwNVfNc1IQM" url="http://youtube.com/watch?v=cwNVfNc1IQM">http://youtube.com/watch?v=cwNVfNc1IQM</YOUTUBE>

 

[mmynedshlp]

Wow
That is tough. I found out recently my neighbor has that problem though she was diagnosed as celiac but her symptoms for some odd reason are the same as your daughters. i wonder if she has been misdiagnosed?
No dairy no grain for her either.
Which we found out no french fries and practically no fast foods ( salads even contain cheese or croutons )

I had given her a jar of quino or quilla or something like that and even that kind of hurt her tummy.

My aunt she has something that she can not have anything with seeds like tomatoes, rasberries would put her in tremoundous pain and many other things too ooh peanutbutter. you see the things would get stuck in her body and cause extreme pain and many of the symptons you described too. Though my aunt is allowed dairy.
I couldnt imagine living with either one of those conditions. So sorry.
I try to cook for the neighbor every once in awhile and i list everything I put in it just to make sure i dont lay her up for a night * yikes*
When I cook for her natural pantrys are my friend

 

[he.loves.her]

Wow
That is tough. I found out recently my neighbor has that problem though she was diagnosed as celiac but her symptoms for some odd reason are the same as your daughters. i wonder if she has been misdiagnosed?
No dairy no grain for her either.

Well Celiac and an Allergy to Gluten are VERY similar. It's the same thing except that with Celiac you truly CAN'T eat ANY Gluten. With the allergy you'll just experience REALLY bad discomfort. And in large amounts it could be very dangerous. But Celiac is a more severe situation. I'm sorry about your neighbor though!

 

[Trina]

Well Celiac and an Allergy to Gluten are VERY similar. It's the same thing except that with Celiac you truly CAN'T eat ANY Gluten. With the allergy you'll just experience REALLY bad discomfort. And in large amounts it could be very dangerous. But Celiac is a more severe situation. I'm sorry about your neighbor though!

Actually that's not true. A true food allergy, as opposed to a food intolerance, causes anaphylaxis, which can be life threatening. More info:
Anaphylaxis

Frequently Asked Questions

A food intolerance will cause discomfort, but a food allergy can be life threatening.

Both my kids are severely allergic to nuts. They can't eat ANYTHING with nuts/nut oils. They require Benadryl and an Epi-pen available at all times in case of a reaction. And that's just to hold them over until they can get to the ER.

 

[Trina]

More specific info regarding Celiac Disease and wheat allergies.

Common Food Allergens

 

[he.loves.her]

Now I'm more confused than when I started. But I'm pretty possative it's just an allergy... Um. I guess I'll ask Lyr's Pediatrician more about it next visit. Because I attempted some online research the other day and everything is contrary to everything else. So. I don't know.

 

[fallon]

I hope you find the answers you're looking for. Talk with her doc and he should be able to help you

 

[Trina]

Now I'm more confused than when I started. But I'm pretty possative it's just an allergy... Um. I guess I'll ask Lyr's Pediatrician more about it next visit. Because I attempted some online research the other day and everything is contrary to everything else. So. I don't know.

Definitely talk with your doctor and do more research. I also suggest taking your DD to see an Allergy specialist. It just bothers me that you say, "it's just an allergy," because food allergies can be serious. The symptoms you described are symptoms of anaphylaxis, which can be life threatening. Sorry to come on so strongly, but my son almost died from a severe allergic reaction (anaphylaxis) due to a nut allergy.