100+ episodes of apnea.... chloe's update...

16th ave.

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Jan 4, 2009
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i missed most of what the doc. was trying to tell me today. cause once he said she basically stops breathing an average of 1 time per minute or something i couldn't take much more in and kinda blanked out a bit there though i was awake and trying to listen to him. but i got it that chloe has severe sleep apnea.
the specialist said it starts out bad and gets much worse as the night goes on.
the numbers started out as 30 then they went to 60 once she reached the deep sleep and the big one was 113 or something other, could've been a higher number. from what i understand all these numbers change pretty quickly in something like an hour or something other. i didn't get most of it. cause i had a baaad brainfart when he started giving me the numbers and telling me how bad it was....
the doc. told me this at 2pm today and my mind still can't get over it. he showed me chloe's x-rays from the first initial visit a few weeks back. they're baaaaad. there is hardly any kind of passage at all due to the size of her adenoids and tonsils. we could tell things was bad just by looking at her tonsils but we had no clue just how bad.

sooooo. chloe is headed to the ear, nose throat doc. and gets a tosilectomy as soon as she goes back to the new family physician (the one that referred us to the specialist.) he's got to see her first and go from there same as emmy did.
hopefully she pulls through it as well as emmy did.

something i can't understand is since things are this bad with her, why in the hell did the last physician miss it, even after learning she was getting sick so much &amp; was having to use that albuterol, easily winded and has some huge tonsils and and snored like a freight train?<EMOJI seq="1f615">:confused:</EMOJI>

we had been worried that something was wrong due to the huge tonsils, how weird she breathed sometimes at night and in the mornings b4 waking, and constant cough and colds, esp. since the colds and coughs got to be more frequent when emmy started school and was bringing home more germs and stuff and the snoring like a freight train sometimes when she was sick and sometimes even when she wasn't. (we never did much or hung out with many folks. mostly stayed home quite a bit.) but we had no idea it was this baaaad.

atleast this info. has clued us in as to why she's so hard to get up in the mornings and cranky all the time even on our (dh's and mine and emmy's) good days....
she aint resting!
:wideeyed::wideeyed::wideeyed::wideeyed::yikes::yikes::yikes::yikes:
 

Dadu2004

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May 16, 2008
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Well that really sucks that the first doctor didn't catch it. I wonder if maybe they weren't paying that close of attention or other symptoms had them distracted or whatever....that's frustrating. I'm glad though that they found the problem and I hope that removing her tonsils, adnoids, and such will really help with the problem.

May have missed it in there, but is she going to have to have a breathing machine at night?
 

16th ave.

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Jan 4, 2009
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not sure about the breathing machine. but chloe has a nebulizer if she needs it. she may have to change up the asmanex. that cough we've been dealing with off-n-on is trying to be a pain in the butt again.
one reason the other doctor. might have missed it is b/c everytime we'd had to run the girls to the e.r. here, the e.r. wasn't sending that doctor the info. about them getting sick and we didn't know it. or we'd have made sure he did get it.

everything is really. F.U.B.A.R. right now....
 

Xero

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Mar 20, 2008
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She shouldn't need a breathing machine at night (my step dad wears one though, but that's because his apnea is due to his weight and not really surgery fixable) because her apnea can be corrected by having her tonsils and adnoids out. I had the same problem as a child and my mom was given the same horrifying numbers. It really explained why I was always so tired and fell asleep often during the day when all the other kids were bouncing off the walls and running around playing. You never get a restful sleep when you have sleep apnea, because you wake up constantly to correct your breathing. It must be really scary to imagine that happening to your own baby. :( Hang in there 16th ave. She'll get better once she has it all out. Children with that problem can fully recover, thank god.
 

mom2many

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Jul 3, 2008
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I cn see where those numbers would be scary!Hopefully the surgery will take care of the problema and poor chloe can get some real sleep at night!
 

16th ave.

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Jan 4, 2009
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thanks guys. after its all set up, we just gotta hope chloe recovers as well as emmy did. things should be a little easier to prepare for this time around...

i'm wondering if they are likely to keep chloe overnight since she has asthma when they remove her tonsils... something to ask the doctor for sure...
 

hwnorth

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Mar 13, 2008
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A few things ...
Surgery does not always correct sleep apnea.. which isnt a bad thing either (read on)

You need to understand the process of sleep apnea especialy if its obstructive apnea. There are several reasons and possible reasons, right from body structure, to being overweight, to your throat and tongue muscles relaxing more than average.

THe "breathing machine" is simply a little machine and keeps possitive pressure on your air passage to keep thm open .. thus allowing full flow of air = breathing = blood is 02 rich = no snoring and gasping = apnea cured

The numbers your Doctor give you to are very important. I would (if you havent) get to a respiratory therapist. The numbers will tell you how many times sleep is interupted, what level of sleep (with apnea you rarely hit REM) and you oxygen satuation levels throughout the night.

People dont realize the severity of health issues for people who snore loud. Apnea affects tons of people who dont know or never get it dealt with.. it can be life threatening if left untreated.

I have severe apnea. I stop breathing an average of every 90 seconds, which then lowers your O2 levels in your blood, once your brain realizes this, it give you a shock which puts you in flight of fight mode .. which takes you out of REM... and the cycle continues.

This had a HUGE impact on my life until I was diagnosed 2 years ago, and took the corrective measures. My stress level, happiness level, energy level.. the list goes on and on. Morning were IMPOSSIBLE for me and I love severl jobs because I slept in and was late ... WHY? .. because after sleeping for 10 hours .. I actually only got about 3 hours of actual sleep.

at 40 years old .. after geting a cpap machine (breathing machine) I sleep .. OMG do I sleep .. 5 hours is PLENTY for me .. and I dream .. I can honestly say I didnt have brightly colored fun dreams for over 20 years .. and now ... AMAZING... I look forward to going to bed just so Ican see what the next dream is.

If you have friends, family, anyone you know who snores loudly, chokes, stops breathing in their sleep ... get them tested asap.. it can be fatal.

16th .... youve caught it early .. your both fortunate