Retarded...
- Thread starter bssage
- Start date
i agree w/ya fallon. when a child is ill or has any sort of health issue--be it mental or whatever, it shouldn't matter what the problem is--insurance should cover it.fallon said:
and thanks for the update too. hope it gets to going better for ya'll.
Thanks I appreciate the support.
Things have taken a turn for the worse since the appointment. Since we returned we have had major meltdown every night without exception.
At bedtime every night she is completely melting down. Banging her head on walls, floors, with her fists, knees. She starts screaming wont go in our bed, her bed, just standing in the middles of the living room floor. We cant pick her up, get her a drink, put on a favorite show, hold her. And we have no idea why. We dont know if she feels bad, fighting sleep, Scared of something. We dont know what to do. We dont know what the problem is.
We are unable to stop it. Its driving everyone crazy. The amount of family stress is very high right now. It last for around three to four hours or until she completely exaust herself. We all feel utterely helpless and frustrated.
7 days and counting.
Things have taken a turn for the worse since the appointment. Since we returned we have had major meltdown every night without exception.
At bedtime every night she is completely melting down. Banging her head on walls, floors, with her fists, knees. She starts screaming wont go in our bed, her bed, just standing in the middles of the living room floor. We cant pick her up, get her a drink, put on a favorite show, hold her. And we have no idea why. We dont know if she feels bad, fighting sleep, Scared of something. We dont know what to do. We dont know what the problem is.
We are unable to stop it. Its driving everyone crazy. The amount of family stress is very high right now. It last for around three to four hours or until she completely exaust herself. We all feel utterely helpless and frustrated.
7 days and counting.
Oh my gosh, I'm so sorry bssage. What could possibly be causing something like that? Maybe you could try playing loud music until she falls asleep, like a baby... I don't know. 
That sounds so frustrating. What could be bothering her? Poor thing. I hope you figure it out.
That sounds so frustrating. What could be bothering her? Poor thing. I hope you figure it out.yeah, I guess I didn't really mean therapistbssage said:
My girlfriend's son is 4 and autistic, he goes to an early intervention program and there's a team of specialists there that usually help her when things like this come up for them. Here in MI these programs are offered through the school system so I was wondering if she did somthing like that.yes.
The problem is that noone really knows what to do. Everyone is just trying stuff. See if this or that works. DD has two teams. One at the universety one in her school. They both have teachers, phyciatrists, speach therapy, and Autism experts. But the bottom line is everyone is just guessin what will work. There is no "best pratices" established for Autism.
I talked to her teacher today (well everyday before and after school) and asked if we could incorperate her identifying "what hurts" with her lessons. I am going to try using an ice cube. Put it on her hand then ask what is cold? On her belly, what is cold? Ear, throat, head, ect. She knows her body parts and can point or say them. but its just an experiment. I think if I can get her to identify cold I may be able to use that for hurt.
I'm really just unloading on this forum. It helps me to calm myself down so I can think more clearly.
The problem is that noone really knows what to do. Everyone is just trying stuff. See if this or that works. DD has two teams. One at the universety one in her school. They both have teachers, phyciatrists, speach therapy, and Autism experts. But the bottom line is everyone is just guessin what will work. There is no "best pratices" established for Autism.
I talked to her teacher today (well everyday before and after school) and asked if we could incorperate her identifying "what hurts" with her lessons. I am going to try using an ice cube. Put it on her hand then ask what is cold? On her belly, what is cold? Ear, throat, head, ect. She knows her body parts and can point or say them. but its just an experiment. I think if I can get her to identify cold I may be able to use that for hurt.
I'm really just unloading on this forum. It helps me to calm myself down so I can think more clearly.
Two good nights in a row. Sat night we gave her a small protion of a sedative mixed with her applesauce (checked with her doc first). She still had the meltdown but hasnt since.
My theory;
The first night, the night of her appointment. She had maybe two hrs sleep. And thats being generious. The hospital was like bringing her into her worst phobia. It would be like bringing a cat to a dog show. So no rest for her the next day. In fact with all the lab coats walking around my guess is her adrenaline was probably pumping all day.
I think that she had built a significant "sleep debt" and like a lot of normal kids and adults she has been fighting sleep because she did not know how to deal with the feelings. We were at a disadvantage because unlike other kids we could not just get mad and send her to her room. Anything punitive would have only exaggerated the situation. The seditive while not knocking her out and ending the meltdown. Did allow her to sleep through the night which is what it took to get her "debt" to a managable place in her head. She has slept 10 hrs for the last two nights and I think (not bragging) we are OK now.
Thanks again for the support
My theory;
The first night, the night of her appointment. She had maybe two hrs sleep. And thats being generious. The hospital was like bringing her into her worst phobia. It would be like bringing a cat to a dog show. So no rest for her the next day. In fact with all the lab coats walking around my guess is her adrenaline was probably pumping all day.
I think that she had built a significant "sleep debt" and like a lot of normal kids and adults she has been fighting sleep because she did not know how to deal with the feelings. We were at a disadvantage because unlike other kids we could not just get mad and send her to her room. Anything punitive would have only exaggerated the situation. The seditive while not knocking her out and ending the meltdown. Did allow her to sleep through the night which is what it took to get her "debt" to a managable place in her head. She has slept 10 hrs for the last two nights and I think (not bragging) we are OK now.
Thanks again for the support
""""sleep debt"""",
""""She has slept 10 hrs for the last two nights and I think (not bragging) we are OK now. """"
that can affect even the healthiest of people. good to see she's finally getting some rest and things are going better. i don't think bragging would hurt in this case.
""""She has slept 10 hrs for the last two nights and I think (not bragging) we are OK now. """"
that can affect even the healthiest of people. good to see she's finally getting some rest and things are going better. i don't think bragging would hurt in this case.